"At 4 months of age, our daughter Julie* was diagnosed with stage 4 hydrocephalus [excess fluid in the brain.]"

"I will never forget the day when the doctors came into the room and told us that my grandson had been diagnosed with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital birth defect."

"Being able to understand exactly what my child is dealing with on a day to day basis has granted me the ability to adjust how I teach her, how I respond to her on hard days, but most importantly, help her understand herself. As a family, we are able to prepare and educate ourselves on how to navigate a healthy and beneficial environment for our daughter."